Tuesday, March 8, 2016

Quick update

Had breast & melanoma follow-ups on 3/7/16:

  • Skin check -- all clear!
  • Clean mammogram on both sides!
  • Lupron shot #4 (larger dose this time -- will last 3 months...)

Things are good! Except for the HOT FLASHES. My next (sarcoma) follow-ups are on 4/19. I'll have a knee MRI & chest X-ray. Next Lupron shot is in 3 months. Next derm appt is in 3 months. Next mammogram is in 6 months.

Monday, January 11, 2016

New year

Sometimes people spend years consumed by their seemingly endless cancer battle, until one day it ends. Sometimes cancer aggressively chews up its victim and spits him out in no time at all. Some people are fortunate enough to "beat" their cancer, but usually not without physical and emotional scars and a life sentence of paranoia. Cancer is a vicious, unpredictable disease that comes in infinite forms.

A dear friend of my sisters, Nick Wilson-Codega, passed away yesterday after a brave battle with rare, advanced esophageal cancer. He shared his diagnosis with the world in November and just two months later, he is gone.

A cure must be found. Help save lives by donating to a LEGIT cancer research foundation, such as Fred Hutch in Seattle (part of the Seattle Cancer Care Alliance where I receive treatment and where Nick was undergoing a clinical trial). So many people think they are supporting cancer research by buying random cancer ribbon merchandise... but many companies simply use the disease as a marketing tool (anyone can slap a ribbon on a product to boost sales). Read THIS for more info on making smart donations.

I kicked off 2016 with six doctor appts in the first week. I am so incredibly fortunate that my follow-ups were uneventful. My knee and lung scans were clear. I received another Lupron injection and began my second month on an aromatase inhibitor. Side effects are minimal... mild hot flashes during the day and chills when I sleep. My family is going on a long-awaited vacation in paradise and I certainly won't be taking it for granted. You just never know if/when life will take a wrong turn. Life, like everything else in nature, may be manipulated... but never controlled.

Rest easy, Nick. You were much too young to be taken from this earth.

Wednesday, December 23, 2015

Bye, 2015!

The latest...

BC medication -- No side effects yet. Of course, it's only been about 2 weeks.

Derm update -- Both biopsies were just mildly atypical with clear margins. Stevie took my stitches out last week. No further treatment.

Next appointments are all on Jan. 5th --

Sarcoma:
MRI of knee
CT of chest
Doctor(s) visit

BC:
Lupron injection #2
Blood labs
Doctor(s) visit

Last post of the year... All is well... Happy holidays!

Tuesday, December 8, 2015

Medication

Quick update, as I am exhausted...

1) Post-op was flawless. Green light to work out!
2) Derm visit went as expected... just had two planned biopsies. Results & sutures out in 10 days (just via phone call / Stevie can remove stitches).
3) Medication (for breast cancer) discussion was a bit more involved...

Tamoxifen is totally off the table. Because it acts as an estrogen in the uterus and could possibly stimulate new fibroids, my medical oncologist feels that it's not the best option for me. Luckily, there is another route I can take... thanks to THIS study that was recently published.

So, I am going to be taking an aromatase inhibitor (a daily pill that lowers estrogen levels by stopping an enzyme in fat tissue) plus monthly ovarian suppression injections (my ovaries will go to sleep and stop producing estrogen). This will throw me into temporary, chemical menopause (hot flashes, night sweats, and more)... plus I may experience fun side-effects like joint pain and bone loss. Learn more about aromatase inhibitors HERE and ovarian suppression HERE.

I had my first injection today... and start my oral meds tomorrow. And still, I must be on these medications for two years before we can think about fertility.

Tuesday, December 1, 2015

Upcoming appointments

Mon, Dec 7th -- 3 month skin check with 2 planned biopsies.
Tues, Dec 8th -- post-op and Tamoxifen discussion.

No, I still haven't started Tamoxifen. Here is my conundrum... The drug acts as an anti-estrogen in breast tissue, but it acts like an estrogen in the uterus. Endometrial and uterine cancer are potential side effects. I have already had two open myomectomies for uterine fibroids -- miserable surgeries. I am a little afraid the drug will cause me another growth or worse. Plus, my grandmother actually had uterine cancer. HOWEVER, this drug is key to reducing my risk of bc recurrence. So, right now I am trying to figure out which risk I want to take... and I am running out of time! Feels like a lose-lose.

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YEAR IN REVIEW:
2 cancer diagnoses 
1 troublesome fibroid
58 doses of radiation
7 radiation tattoos :)
5 operations with general anesthesia
8 nights in the hospital
3 trips to the ER
countless biopsies
countless imaging
countless blood labs & injections
countless tedious appointments
countless scars on my body
countless hours of frustration, pain, worry
countless drives to Seattle and back
and many, many, MANY dollars spent

2016... I see you!