Thursday, Dec. 11th -- Met with UW Genetics. They spent an hour with me recording all of my family history (hardly any cancer!) and explained that I am being tested for Li-Fraumeni Syndrome. I'm not even going to elaborate on that one, because it's rare and unlikely. The link explains it all. It was just a simple blood draw. Modern medicine is amazing!
I should receive these results shortly after Christmas. I go back to SCCA on Tuesday, January 6th to formally discuss the results and finally schedule the appropriate treatment. Stevie and I can't believe that the best case scenario involves 5 weeks of radiation. Kind of strange to be pulling for radiation.
Wednesday, December 17, 2014
Wednesday, December 10, 2014
Next steps
Scan results:
CT of lungs - clear (!!)
MRI of knee - some uptake, but indiscernible.
New development:
Meeting with Genetics at UW to determine if I have a predisposition to growing tumors. This is because I am only 31 and have been diagnosed with two separate cancers. As I stated in an earlier post, I was already scheduled to have this done at OHSU in February... but we need to know now. If I do have a genetic predisposition, radiation might not be a good idea. The risk of radiation causing a new growth would outweigh the benefit of treatment. If I don't, which is most likely, then we will continue with the originally proposed treatment.
Most likely scenario:
5 weeks of radiation at SCCA beginning in mid- to late-January. Then 5 weeks of rest. Then re-excision surgery. Start to finish is about 3 months.
Genetics testing will take place on 12/11 and I won't have the results for about 3 weeks. My sarcoma is low-grade and hasn't spread, so my doctors are comfortable with this timeline.
Time to enjoy the holidays and just wait.
//
Learn more about the sarcoma program at SCCA. My doctor is featured in this video.
CT of lungs - clear (!!)
MRI of knee - some uptake, but indiscernible.
New development:
Meeting with Genetics at UW to determine if I have a predisposition to growing tumors. This is because I am only 31 and have been diagnosed with two separate cancers. As I stated in an earlier post, I was already scheduled to have this done at OHSU in February... but we need to know now. If I do have a genetic predisposition, radiation might not be a good idea. The risk of radiation causing a new growth would outweigh the benefit of treatment. If I don't, which is most likely, then we will continue with the originally proposed treatment.
Most likely scenario:
5 weeks of radiation at SCCA beginning in mid- to late-January. Then 5 weeks of rest. Then re-excision surgery. Start to finish is about 3 months.
Genetics testing will take place on 12/11 and I won't have the results for about 3 weeks. My sarcoma is low-grade and hasn't spread, so my doctors are comfortable with this timeline.
Time to enjoy the holidays and just wait.
//
Learn more about the sarcoma program at SCCA. My doctor is featured in this video.
Friday, December 5, 2014
Upcoming appointments
New appointments are scheduled for Tues, Dec 9 --
UW Medical Center
MRI of the left medial knee
CT of the lungs
*Results will be immediately available.
SCCA
Meet radiation oncologist for the first time and discuss treatment options based on those imaging results. Sarcoma specialist will also be present.
UW Medical Center
MRI of the left medial knee
CT of the lungs
*Results will be immediately available.
SCCA
Meet radiation oncologist for the first time and discuss treatment options based on those imaging results. Sarcoma specialist will also be present.
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